Month: May 2023

OH Bloomin Bloomin! … hospital phone call at 8:45 … my fluids are low … could I come in this morning for an infusion … a big infusion … it’ll take about 4 hours 🤔 So here I am … I know very well that I’m lucky to be being looked after by these wonderful… Continue reading DAY 196🗣️💧

To hospital for a blood test at 12:50 – all done nice and quickly … home by 1:30. At 3pm the hospital phone to say that the blood test indicates that my creatinine level is high 🙄. I hadn’t felt quite right for a while, and this explains why. I must drink more water, and… Continue reading DAY 195🗣️

Today is my last day taking Lenalidomide – for a week … it’s my 4th week of maintenance, holiday 🥳🎉👏🙂 – No more until next month! So until the 5th of June it’s … Hi VERY unfortunately, I must carry on taking Rivaroxaban (anticoagulant) because the Blood Clotting effects of Lenalidomide may linger 🫤🤬 ….… Continue reading DAY 194🗣️

I think (hope) that I’m ticking along quite well at the moment … Blood test frequency has decreased to one every two weeks – which is much better than two every week. I’m doing more physical things every day, and slowly becoming stronger 💪 … doesn’t the weather help ☀️🕶️? We’ve been enjoying the Chelsea… Continue reading DAY 191🗣️😊

Had a pedicure (and brief foot massage) today 😊😊 It left me feeling a bit like this …