DAY 204🗣️🙂

I am a bit tired of all this chemical stuff, and wish that there was a more sophisticated treatment … but I’m glad and grateful for what’s available right now.

Today I was out with Mandy, and called in to have coffee with Max.  Suddenly I was being complained to, for not keeping track of my Hubble Bubble stuff.  So here’s the latest …

Worry 1 – fatigue which kicks in rapidly and I know affects my mobility. It’s strange, but if I have a little sleep I can walk a little bit better.

Worry 2 – as I’ve mentioned, my medication includes an anticoagulant called RIVAROXABAN. One of the side-effects of this drug is weakening of legs, and I’m absolutely convinced that that’s what’s happened to me.

There is a replacement drug called Apixaban, and that apparently doesn’t have this effect.
I do plan to ask whether it’s worth/viable/sensible changing medication.

The biggest, and most tiresome problem for me is lack of mobility; and having a dangerous wobbly walk.

I am definitely going to contact my consultant about this – TOMORROW!


Just for info … Mayo clinic state that fairly common side effects of Rivaroxaban are >

  • Back pain
  • bleeding gums
  • bloody stools
  • bowel or bladder dysfunction
  • burning, crawling, itching, numbness, prickling, “pins and needles”, or tingling feelings
  • coughing up blood
  • difficulty with breathing or swallowing
  • dizziness
  • headache
  • increased menstrual flow or vaginal bleeding
  • leg weakness
  • nosebleeds
  • numbness
  • paralysis
  • prolonged bleeding from cuts
  • red or black, tarry stools
  • red or dark brown urine
  • vomiting of blood or material that looks like coffee grounds

I suppose I’m quite lucky really 😊

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