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Yesterday we had a meeting with my consultant, to discuss progress. It seems that, with Mandy’s support, I’m doing well.  Very well 😊😊 Dr Gurung tried to convince me that the change to Apixaban could have caused the rash that’s driving me mad … this distracted my for a few seconds BUT after this distraction,… Continue reading DAY 220 ⛱️🗣️

Today has been a slightly weird scrundly day, because of the rash and itching. But I haven’t taken any any anti-itch stuff, or anti-histamines … maybe I should have. I’m hoping that things will improve tomorrow 🙂🤞 I’m hoping that, because the itching hasn’t been so bad today – but the tiredness has been horrible.… Continue reading DAY 216😊🗣️😕🤔🥴

Today I’ve been very itchy 😕 … I just can’t stop scratching …. … it was really irritating, until I found this! https://ashpublications.org/blood/article/128/22/4532/101393/Multiple-Myeloma-Patients-with-Lenalidomide “Multiple Myeloma Patients with Lenalidomide-Associated Skin Rash Have a Favourable Prognosis” Now, I’m happy to scratch 😊🤣 Happy Days! 😊

Yesterday, I had a call from the hospital 😳.  It was to tell me about the situation with Rivaroxaban & Apixaban.  These are HubblyBubbly things which limit blood clotting, and are essential when taking things like Lenalidomide because it tends to cause blood clots … and nobody wants a clot 🙄 Apparently my Consultant said… Continue reading DAY 212⛱️🗣️