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I was diagnosed with this nastybeastyhorribleevil disease, just over a year ago.  And apart from all of the medical stuff, we were advised to:  So we did.   AA is quite cool, because it means that Mandy gets paid (a bit) to attend to my every wish 🙂.  (You’ll know that I’m exaggerating a bit… Continue reading DAY 88

TODAY, I’VE BEEN ……….. LACKADAISICAL = lacking life, spirit, or zest … WHICH IS WHY I’VE WRITTEN VERY LITTLE 🤔

Only two weeks, and it’ll be DAY 100! And my four weeks of Stem Cell Transplant in King’s College Hospital feels like something that happened to somebody else, a very long time ago. Anyway … today I’m … Yes, it’s that lovely time when the steroids leave my body, and leave me feeling strange, a… Continue reading DAY 86

Today, I’m Mr Tasteless … Because I can’t taste Marmite, and Garlic ☹️ I could yesterday, but not today – how weird – it’s as though a wire’s come undone somewhere. I’m still on a Steroid high energy, very dynamic, ‘what shall I do next?’ day – which is interesting for me, but slightly worrying… Continue reading DAY 85

Today, the steroids really really kicked in – and I’ve been ‘running’ round the house doing lots of jobs and stuff! I checked on my reaction to steroids, last year … it looks very similar to this year … so that explains yesterday 🙂 I’d totally forgotten the ‘NOT GOOD DOZY’ bit 🙄 I’m not… Continue reading DAY 84

WELL! WELL WHAT A DIFFERENCE A WEEK MAKES!! 🤔😊 After a few (18) tablets at home … We’re off to hospital AGAIN for  a midday series of appointments, including more LOVELY Chemo Ken🙄 Compared with last Monday, it was  incredibly smoothly rapidly rapid today. The magical three … Blood Test, Darzalex (1800mg) jab 💉😣, and Velcade… Continue reading DAY 83

We had family friends visiting today, to celebrate Mandy’s Birthday 🎂🎈🥳 with cake and coffee, in the garden It was quite a short visit, but a lovely one, and it made me think. What a very long time it is, since our lives were ‘normal’. The combination of the two spiky devils, Covid and Ken,… Continue reading DAY 82

The consultant phoned, yesterday afternoon  – and apologised for changing my Chemo Ken Velcade dose, without telling me that he had 🙄.   Apart from that, everything is fine, though I wonder what next Monday (after last Monday) will bring?  There’s nothing major to report today, except that I’ve started turning HubbleBubble into a book 😊 So I… Continue reading DAY 81

Today, is DAY 80, and I’m in love! In love with my immune system x And that’s because, it was deliberately, totally, and completely knocked out in November at King’s College Hospital. But now it has fought it’s way back, and kept me safe this week, after a fairly wretched infection that I picked up… Continue reading DAY 80

Well! Today I am …… Mr Coldy and Sneezy! I’m pretty sure that I caught this horrible moldy cold on last horrible Monday … DAY 76 … when some bad things happened. Sure, because I don’t get out much at the moment – apart from to Hospital, and the Friary🙄 … and the Friary is… Continue reading DAY 79