I’m going to add separate pages to Hubble Bubble to describe what happened … Before I was diagnosed, When I was diagnosed, and After I was diagnosed with Myeloma.
I will start adding to the blog daily, from today, to describe what’s happening and how I’m feeling. This may help someone, somewhere, sometime – and I’m fairly sure that it’ll help me (and my family).
Well here we go …
Today is Saturday 20th August 2022.
I’m having Hubble Bubble (Chemotherapy) right now. One of the very strange things about it is that its effects are variable and totally unpredictable.
Anyway, my mind is on Monday, when I must be in hospital in London by 8:30 am. I’ll spend about 7 hours there, while my Stem Cells are collected, by a magic machine.
These Stem Cells are essential for the Stem Cell Transplant which I’ll have in September. I believe, that this will send my Myeloma into remission 🙂
That’s a very very good reason to be positive.
But for some reason that I can’t identify, I am not feeling very positive at the moment.
Maybe I’m a bit tired – yes, that’s it, I’m tired.
It’s a very pleasant day, so I’ll have a sleep in the garden this afternoon, and report back.
OK I’m back after a sleep, and a feel very much better! That’s a lesson that I’m still learning. It’s ultra important, when you’re having Hubble Bubble, to sleep when you feel tired.
Prior to Monday I’ve had to inject myself in my stomach with ‘figrastim’.
It’s not terrible, but it does leave me feeling a bit weak, achy and with a feeling slightly sick :-/.
On the up side it makes my body produce more stem cells.
That’s the very positive thing :-).
You make a good point, it’s remarkable how much fatigue can affect our mood. How was it injecting the potion yourself? Did you find yourself getting used to it?
That’s quite the early start tomorrow, I’ll be thinking of you all day,
love you lots ♥️
Oh Hello again Rhian 🙂
Injecting myself with G-CSF was ok, once I’d done it once!
Surprisingly, it didn’t hurt – so I didn’t need to be brave.
No, I didn’t get used to it at all … and didn’t ever want to do it, but was really glad that I could.
I’d been a bit worried that I hadn’t had any painful side effects! – and wondered if the injections weren’t working.
But today, at 4 am, I knew that the injections we’re doing their job.
I had an intense pulsating pain in my pelvis.
I’d been warned about this. The G-CSF causes an increased production of stem cells which are produced inside bones, and because bones are not bendy, cause pain.
So time for pain killers, and I’m OK now 🙂
I’ll keep you posted on tomorrow’s progress …
Hi big brother.
What a brilliant idea to write a blog. Wish I could pop in for a coffee too.
I will be thinking of you both tomorrow.
Good luck in keeping that left arm still!!