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Today, is DAY 80, and I’m in love! In love with my immune system x And that’s because, it was deliberately, totally, and completely knocked out in November at King’s College Hospital. But now it has fought it’s way back, and kept me safe this week, after a fairly wretched infection that I picked up… Continue reading DAY 80

Well! Today I am …… Mr Coldy and Sneezy! I’m pretty sure that I caught this horrible moldy cold on last horrible Monday … DAY 76 … when some bad things happened. Sure, because I don’t get out much at the moment – apart from to Hospital, and the Friary🙄 … and the Friary is… Continue reading DAY 79

I woke this morning as Mr Equanimity (the  state of being calm and in control of your emotions) and I rather like it. I think I’ll stay as Mr E. And we had a lovely daffodily walk at the Friary today … I happily managed 2745 steps A perfect day xx

So much better than the rather unpleasant yesterday. The Steroids have really kicked in, and now I feel very dynamic … I feel as though I’ve been whizzing about everywhere, but I don’t think Mandy would agree 🙄 King’s College Hospital are due to phone this afternoon for a checkup – so I’m trying to… Continue reading DAY 77

I’m sorry that this is a bit long BUT it’s been a really horribly awfully bad day in the office hospital today 🫤 I arrived, registered with reception, and had my blood test. Only 3 bottles today, rather than the normal 5. That’s the day’s good news 😊🎉 Then back to reception to register for… Continue reading DAY 76

Well, I’m not sure, but I think that I may be a bit better than yesterday, but maybe not. My mobility is really not what it should be. I’m working really hard on my positivity … … because I need to right now. Though I feel a bit like this … … slightly lost in… Continue reading DAY 75

A bit very slow again today, and mobility has deteriorated a little. I’d forgotten … that this is what happened last time 🙄 Oh well … be patient 🫤

DAY 73, and so VERY much better than DAY 72! 🥳 … what a relief to no longer be going through steroid Cold Turkey😊 How wonderful to not feel weirdly, and uncontrollably, dopey 😵‍💫 All of the Strange-Steroid-Stuff, must have left my body … Hooray!! But I have to put more of it into me… Continue reading DAY 73

Still quite ‘Dexy’, like yesterday! But I know that I’ll be better tomorrow 🤞

Well, it’s been a bit predictable today … the Steroid, Dexamethasone, has been leaving me, and taking all my energy with it. It’s predictable because, when I had Ken, last year, I had Dexamethasone, and kept a spread sheet, to record things, for the whole treatment. Here’s part of that record for June: As you… Continue reading DAY 71