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Yesterday I mentioned that we were hoping to find calmer waters … 🙂🙂 Well yesterday evening we hit even more stormy times🫤🙁 I was pottering about in the kitchen, doing domestic stuff, when I heard Mandy’s voice … I thought that she was talking to our feral cat visitor in the garden (it was about… Continue reading DAY 90!!!

A very grey damp Sunday 😕 We’re both recovering from a very quite unpleasant chesty cold, and feeling fairly floppity. For the last two weeks it’s felt quite physically and emotionally stormy here, for both of us ..l … a bit like this BUT … tomorrow is DAY 90 😊🥳🤓🫠👍, and hopefully we’re heading for… Continue reading DAY 89

I was diagnosed with this nastybeastyhorribleevil disease, just over a year ago.  And apart from all of the medical stuff, we were advised to:  So we did.   AA is quite cool, because it means that Mandy gets paid (a bit) to attend to my every wish 🙂.  (You’ll know that I’m exaggerating a bit… Continue reading DAY 88

TODAY, I’VE BEEN ……….. LACKADAISICAL = lacking life, spirit, or zest … WHICH IS WHY I’VE WRITTEN VERY LITTLE 🤔

Only two weeks, and it’ll be DAY 100! And my four weeks of Stem Cell Transplant in King’s College Hospital feels like something that happened to somebody else, a very long time ago. Anyway … today I’m … Yes, it’s that lovely time when the steroids leave my body, and leave me feeling strange, a… Continue reading DAY 86

Today, I’m Mr Tasteless … Because I can’t taste Marmite, and Garlic ☹️ I could yesterday, but not today – how weird – it’s as though a wire’s come undone somewhere. I’m still on a Steroid high energy, very dynamic, ‘what shall I do next?’ day – which is interesting for me, but slightly worrying… Continue reading DAY 85

Today, the steroids really really kicked in – and I’ve been ‘running’ round the house doing lots of jobs and stuff! I checked on my reaction to steroids, last year … it looks very similar to this year … so that explains yesterday 🙂 I’d totally forgotten the ‘NOT GOOD DOZY’ bit 🙄 I’m not… Continue reading DAY 84

WELL! WELL WHAT A DIFFERENCE A WEEK MAKES!! 🤔😊 After a few (18) tablets at home … We’re off to hospital AGAIN for  a midday series of appointments, including more LOVELY Chemo Ken🙄 Compared with last Monday, it was  incredibly smoothly rapidly rapid today. The magical three … Blood Test, Darzalex (1800mg) jab 💉😣, and Velcade… Continue reading DAY 83

We had family friends visiting today, to celebrate Mandy’s Birthday 🎂🎈🥳 with cake and coffee, in the garden It was quite a short visit, but a lovely one, and it made me think. What a very long time it is, since our lives were ‘normal’. The combination of the two spiky devils, Covid and Ken,… Continue reading DAY 82

The consultant phoned, yesterday afternoon  – and apologised for changing my Chemo Ken Velcade dose, without telling me that he had 🙄.   Apart from that, everything is fine, though I wonder what next Monday (after last Monday) will bring?  There’s nothing major to report today, except that I’ve started turning HubbleBubble into a book 😊 So I… Continue reading DAY 81