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Today, and the last few days have been quite rough, and not nice, a bit like this … I’d totally forgotten, that HubbleBubble drugs accumulate over time, so that the side effects increase as days go by. And one of the big effects is Weird, Utterly Limiting, Fatigue 🥱 It’s not just like being a… Continue reading DAY 108

Some very good PLATELET news ! THEY’RE COMING BACK 🥳

It’s a Hubble Bubble day, and amongst other things, that means lots of steroids. These seem to be hitting me much harder than last year😕 Here are some of the Side Effects which are definitely with me. They arrive very quickly … All three of the last one, are all mine! So if you should… Continue reading DAY 104

Definitely better than yesterday 👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏 It’s so wonderful when things are improving … even when there’s more Hubble Bubble tomorrow morning 🙄

Both quite tired … BUT things are improving … SLOWLY 🙂 I drive us to Maidstone, and go into my first shop in over 4 months – Halfords to get a new car battery (in the hope that the alarm won’t start again in the middle of the night) 😐🙂 Chemo Ken is really messing… Continue reading DAY 102

Bit very tired today because of car alarm problems at midnight and 1am this morning 🙄🤬☹️ Had a fairly long video phone call with KCH physiotherapist (Shana) this afternoon … The problem with that, is somehow Shana can see right through me … I feel certain that she has more eyes … … than she… Continue reading DAY 101

“Day 100 is a milestone that many stem cell transplant recipients circle boldly on their calendars as the turning point in their recovery. That’s when the greatest risk for critical side effects is past and when the stem cells have engrafted and begun making new blood cells” 😊

This is roughly how I walk on these steroid days – though very much more slowly. But optimism is rising on DAY 99, that it won’t be long before I’m much less ‘ducky’! 🤣 I can start redoing all of the vaccinations I’ve ever had, from tomorrow. It’ll take about a year to get them… Continue reading DAY 99