Feet 👣

Today I had my feet checked by a foot healthcare specialist, Kay, and prepared for the on-coming storm. It really was a very pleasant experience, and vastly better than the nuclear kidney thing. She warned me about the risks of wearing Hospital tights, if toenails are too well trimmed.  Isn’t it amazing what we don’t… Continue reading Feet 👣

Nuclear Kidneys

Oh happy days! I now have an appointment to have my kidneys tested. I’m very fond of my kidneys … I’ve had them quite a long time, and they’ve always been very good to me. But now they’re planning to inject me with radio active nuclear stuff, to see how well they’re performing. So, I… Continue reading Nuclear Kidneys

Stress, Risk and Worries

Should I phone Hospital to ask how things are progressing???? Do they have a date in mind, for my transplant? ………… I’ve just phoned, and talked with the Specialist Myeloma SCT nurse, Susan. Apparently they’ve had problems because the Derek Mitchell Ward had to be closed for a while. The Derek Mitchel ward is a… Continue reading Stress, Risk and Worries

Washed Up!

We had a meeting with my local Consultant, here in Kent yesterday. He said that it was a ‘wash up’ meeting. His support through Hubble Bubble (chemo), from February to June, has been superb. Apparently all of my Stem Cell treatment will now be managed by my hospital in London. A hundred days after the… Continue reading Washed Up!

Preparation Part 1

This is a waiting time.   Last week (1st September onwards) I did not wait very well … in fact I waited really really badly. I waited impatiently for the post to arrive, and for the phone to ring, and (to use a lovely old word) was disgruntled when there was no news from hospital. … Continue reading Preparation Part 1

!BIG NEWS!

Tuesday 30th August 2020 I phoned the Specialist Nurse again on Tuesday (30th) but no news 😕, and the nurse sounded really exhausted. We get on with jobs about the house. Wednesday 31st August 2020 I’ve been having trouble adding a page to the Hubble Bubble website, and after a lot of effort it eventually… Continue reading !BIG NEWS!

27th>29th August

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Saturday 27th I spend several hours searching Google for good information on Stem Cell Count numbers, essential for an efficient and effective transplant … And find that the US Virginia Cancer Institute’s website indicates that: “An optimal number of stem cells to support rapid bone marrow recovery and blood cell production after treatment with high-dose… Continue reading 27th>29th August

24th>26th August (news)

 Wednesday 24th We thought today would be a peaceful day and that we both could  recover a bit.  But unfortunately I had a phone appointment with the hospital psychology department for a check-up.    Apparently apart from thoroughly checking your body they check your mind to. I understand why, and am grateful for that. BUT… Continue reading 24th>26th August (news)